2023 Patient Advocacy Summit – Register Today!

 Published: April 14, 2023


graphic with Respiratory Patient Advocacy Summit logo and event details

Gaining Control of Your Health

A 2-Day Virtual Event

Tuesday, June 13, 2023
1:00 p.m. CST–4:15 p.m. CST
Wednesday, June 14, 2023
1:00 p.m. CST–4:30 p.m. CST

(25-minute lectures + 5 minutes for Q&A)

Reserve Your Spot

You will be required to sign in with a Zoom, Apple, Google, or Facebook account to register. You may create a free Zoom account when registering.

Are you a respiratory patient or a caregiver for a loved one? Then join the movement and attend our Annual AARC Respiratory Patient Advocacy Summit meeting, which will be held virtually. The AARC invites all respiratory therapists AND their patients and caregivers to join this annual meeting to advocate for advancing the quality of care for chronic respiratory patients. This event is designed for patients and caregivers and is not approved for CRCE.

Registered attendees will receive a copy of A Patient’s Guide to Aerosol Medication Delivery — 4th Edition on June 9.

Day 1 Schedule — Tuesday, June 13

1:00 p.m. CST–1:10 p.m. CST

Welcome & Opening Remarks


1:10 p.m.–1:20 p.m. CST

National Respiratory Patient Advocacy Award

Sharman Lamka, Executive Director; FACES Foundation

Sharman Lamka


  • Provide an overview of the FACES Foundation, how it was founded, its purpose and mission.
  • Discuss collaboration between the AARC and FACES for the Patient Advocacy Award.
  • Provide a brief background on the 2022 winner, their bio, and why they won.

1:20 p.m.–1:25 p.m. CST

2022 Winner: National Respiratory Advocacy Award

Cheryl Skinner MSc, RRT, CPFT, AE-C

1:25 p.m.–1:35 p.m. CST

Patient Story

1:35 p.m.–2:05 p.m. CST

Adding Oxygen to Your Life


Kim Wiles


  • Identify the differences in home oxygen equipment.
  •  Discuss use of pulse oximetry monitoring.
  •  Understand safe use of oxygen in the home.

2:05 p.m.–2:15 p.m. CST


2:15 p.m.–2:45 p.m. CST

5 things you need to know about COPD Medications


Mary Hart


  • Review common medications prescribed for COPD.
  • Explain the different types of medication delivery devices.
  • Define “Shared Decision-Making”.

2:45 p.m.–2:55 p.m. CST

Patient Story

2:55 p.m.–3:25 p.m. CST

Pulmonary Rehabilitation: Get Up & Move!

Debbie Koehl, MS, RRT, RRT-NPS, AE-C, FAARC

Debbie Koehl

Patients with lung disease often feel frustrated about their breathing and limitations. Pulmonary rehabilitation is a program that can help you! This talk will allow you to learn more about pulmonary rehabilitation and the benefits of joining a program.


  • Discuss the benefits of attending a pulmonary rehabilitation program.
  • Describe how to enroll in a pulmonary rehab program.

3:25 p.m.–3:35 p.m. CST

Interactive Session — Breathing Techniques/Movement for the Respiratory Patient

Debbie Koehl MS, RRT, RRT-NPS, AE-C, FAARC

3:35 p.m.–4:05 p.m. CST

Ask Dr. Brian

Brian Carlin, MD

Brian Carlin

Attendees will be able to ask Dr. Carlin any question they may have regarding their respiratory disease/illness.

4:05 p.m.–4:15 p.m. CST

Closing Remarks

Doug Laher MBA, RRT, FAARC

Day 2 Schedule — Wednesday, June 14

1:00 p.m. CST–1:05 p.m. CST

Welcome & Opening Remarks


1:05 p.m.–1:35 p.m. CST

I’m a Caregiver; Now What?

Mandy De Vries, MSc, RRT, RRT-NPS

Mandy De Vries

Join me on my journey from family member to caregiver as I share my experience navigating the complexities of caregiving.


  • To empower caregivers with strategies for success.
  • Tips for managing your caregiver role.
  • Prioritizing self-care.

1:35 p.m.–1:45 p.m. CST

Patient Story

1:45 p.m.–2:15 p.m. CST

Empowering Yourself and Your Loved Ones: Benefits of Legal Preparation

Anthony DeWitt JD, RRT, FAARC

Anthony DeWitt

I will discuss end-of-life issues related to planning for health care decisions and avoiding the complications that come from loved ones having different perspectives on what healthcare should be done. Living wills, durable health care power of attorney, and guardianships will be discussed.


  • Understand the difference between a living will and a durable power of attorney.
  • Understand how to limit the discretion of your health care agent.

2:15 p.m.–2:35 p.m. CST

Break — Chair Yoga

Julia O’Shea, BA, RRT

2:35 p.m.–3:05 p.m. CST

Long COVID: Is it Here to Stay?

Dave Burnett, Ph.D., RRT

Dave Burnette

It’s well documented that pulmonary rehabilitation (PR) improves exercise capacity, quality of life, and dyspnea in people with chronic lung diseases. The American Thoracic Society and European Respiratory Society recommend using a framework of PR for treating people with Long-Covid. However, access to PR is poor. Improving the lives of people with chronic lung disease and Long-Covid requires an understanding of the evidence. This lecture will explain the most recent evidence-based guidelines on PR, with an emphasis on improving access to care.


  • Discuss the causes, symptoms and diagnosis of Long COVID.
  • Understand treatment strategies for Long COVID.

3:05 p.m.–3:15 p.m. CST

Patient Story

3:15 p.m.–3:45 p.m. CST

Tips for Becoming Your Own Health Advocate

Krystal Craddock, MSRC, RRT, RRT-ACCS, RRT-NPS, AE-C, CCM

Krystal Craddock

From pharmacy interactions to durable medical equipment and clinic or hospital visits, patients and family often rely on themselves to understand what is happening and what they need. But where do you start and what should you ask? This lecture will help provide you with tools to better advocate for you and your family’s healthcare to better manage the disease and get the best care necessary.


  • Be able to formulate questions to ask your healthcare provider and pharmacist to better understand the plan of care.
  • Be able to recall how to keep track of your own medical information.
  • Understand basics of health insurance including different types and billing aspects.

3:45 p.m.–4:15 p.m. CST

Palliative Care: What It Is, What It’s Not, and How It Can Help

Josh Arenth, MD

Josh Arenth

An introduction and overview of what palliative care is and debunking of common misconceptions with focus on potential benefits for patients with respiratory disease.


  • Define palliative care.
  • Differentiate palliative care and hospice.
  • Identify appropriate patient populations who could benefit from palliative care.
  • Identify ways palliative care can help patients with respiratory disease.
  • Initiate the first steps in advance care planning discussions.

4:15 p.m.–4:30 p.m. CST

Closing Remarks

Doug Laher MBA, RRT, FAARC

Email newsroom@aarc.org with questions or comments, we’d love to hear from you.

Heading to the New Era

Elevate | Engage | Advocate | Educate

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